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Jigsawing

Blogs can be like those really difficult jigsaws that it might take you years to complete but, at the end, you can’t quite complete because of all the missing pieces. You know exactly what those...

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Nonsense

Whenever Anthony says something during our afternoons together, I either hit ‘mute’ on the television, or ‘pause’ if it’s a dvd. This is so that I can listen and respond to whatever he is saying, or...

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The magic of make-believe

One of the most wonderful aspects of being a small child is the magic of ‘make-believe’ – the power of the young imagination to create anything out of anything and to see the world through the lens of...

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Disorientation

When I entered Anthony’s room the other day, his lunch had just been delivered but he was staring past the meal into space. So I pulled my chair close to his and began to feed him, spoonful by...

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Last Christmas

Last Christmas was the first Christmas that Ming and I didn’t bring Anthony home and, instead, exchanged gifts and food in the nursing home, where my mother joined us after church. She reminded me the...

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Hello!

I am interrupting my blog break with a post because of an incident that has shaken me. Two days ago, Anthony’s brother, J, a couple of lovely nephews, and Ants’ oldest friend, all convened at the...

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Vacuuming

On the eve of Ming’s 22nd birthday I asked him to vacuum the house. I had already given him a pre-birthday present of some money, but told him that he would only get the rest if he vacuumed the house....

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“Ming the Merciless”

During Ming’s last year at high school, all of the kids were allowed to imprint on their grammar school jackets an emblem or phrase that represented who they were. Ming chose “Ming the Merciless”. And...

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Caring for the carer

I am on the brink of facilitating a couple of carer support meetings, so I thought this would be a good place to air some of my thoughts beforehand. Carers/care-givers – who care for and/or about loved...

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Dress rehearsal

It’s now been a bit over a month since I thought Anthony was on the brink of death. In the space of a couple of days, he had suddenly become unable to chew and swallow food in the ordinary way, and, on...

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